Once Again, Back To Work, Back To Living



SOURCE:    By Terry Hughes

Column

PUBLICATION: St. Louis Post-Dispatch
SECTION:



DATE: July 17, 1990
EDITION: 5*
PAGE: 3A



HI. I'M BACK.


It has taken longer than I had hoped; it has been tougher in some respects (and easier in others) than I expected, but I'm back.

Where to start? The last time I sat down to write something to fill this space, daffodils were just fading. Now, we've gone through the peonies and azaleas all the way to full summer, that heavy and slow time of year when the planet puts on the lush green of life and shouts for our attention.

 

Well, I feel like shouting, too. Hey - I'm alive and surrounded by people who care.

 

As some of you know, I've been sidelined since May by cancer treatments. I've been the beneficiary of an autologous bone marrow transplant, the latest tool doctors have found to battle my particular form of the disease.

 

It is an incredible procedure. Doctors drew marrow from my pelvis and froze it in a couple of plastic bags. Then they gave me huge doses of anti-cancer drugs. The drugs kill everything that grows rapidly, which is an earmark of cancer cells.

The problem is, healthy blood cells are killed along with the bad ones. That's why the doctors took my bone marrow, and why, a few days after the chemotherapy, they defrosted it and shot it back into my bloodstream. The marrow, with cells that create new blood, helped my body build back what it needed.

 

That's the short version. There was, of course, a lot more to it and I'll be writing about the experience in more detail later, outside of this column.

For now, it's enough to say that after six weeks in the hospital and a few more at home, all signs are go. I'm not quite up to speed - I'll be writing for you once a week for the time being - but we'll pick up the pace soon enough, too.

 

I'd like to share a few reflections on the last two months.

 

The hospital stay was spent in a modified isolation. I could have visitors, but because of the decimation of infection-fighting blood cells I was limited for several weeks to the specially filtered air of my room or, if I wore a heavy mask over my nose and mouth, the corridor of the bone marrow transplant unit on the 13th floor of Barnes Hospital.

 

More than the physical isolation, I had feared an emotional aloneness that might accompany it. It quickly became apparent, much to my relief, that this was not going to happen.

My mother stayed with me throughout the hospital stay, sleeping in the room on a small hide-a-bed which she bravely insisted was perfectly comfortable. We talked about everything from unfinished embroidery projects to concepts of eternity and death. I am amazed, again and still, at Mom's ability to stare adversity in the face and then just deal with it.

 

And every day, the mail brought reinforcements for any flagging emotions I might have experienced. Many of the cards and messages were from friends. Almost as many - dozens over the course of my stay - came from people I had never met. This was unexpected and frequently overwhelming. The mail reinforced my belief that people are, at the core, wonderful.

 

Still, there was no question that the world at large was not mine. I watched May's storm clouds and outbursts from behind double-paned, tinted windows. I read about the weather, the floods and wind that were making such havoc, but it seemed absurdly irrelevant.

 

Then came a hot June day, about four weeks into the hospital stay, when my doctor told me that if my blood counts continued their recovering trend the next day, he'd give me a pass to leave the hospital - to actually GO OUTSIDE-

I spent the rest of that day in a state of agitated anticipation, thinking about the feel of sun on my skin and the smell of grass. I remember wondering if my legs would be steady on the lawn after weeks of contact with nothing but linoleum.

Around noon the next day, the doctors came in and said yes, I could have my pass.

 

An hour later, as I stepped out the door of Queeny Tower, I was startled by a warm sensation that wrapped itself around me and rustled my clothes. ''Wind-'' I thought. ''I forgot about wind.''

 

Shortly after I entered the hospital, a friend brought me a stuffed toy. It was a green caterpillar that, through the miracle of a Velcro closure along its underside, could be opened up and turned inside out, converting to soft, colorful butterfly.

It sat on my window sill and became a means of signaling my condition. Was it an icky green day, or a butterfly day?

 

The butterfly's out now. He might duck back inside from time to time, but now I know that no matter how ''green'' a particular day might be, that butterfly's hiding inside, just waiting.